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Showing posts from September, 2020

No News Meant Good News!

Day 71.  It's been over a month since I last posted an update here. The big update is that my team (made up of rotating transplant doctors, a PA, an NP and a nurse) reached out to the PNH specialist and pediatric teams and learned that for marrow failure disorders of blood, the T-cells are coming in at a totally normal rate. This contrasted with their experience with the huge majority of their patients who have lymphoma or leukemia. So, using the data from other PNH patients or non-malignant blood disease (usually diagnosed in childhood), I was perfectly on track the whole time, and they keep reiterating that I'm right on schedule, but the schedule for this can be from 1-4 years.🙏  My T-cell chimerism donor percent did increase from 17% donor to 25%. Thank you for your prayers! They also did a chimerism measurement of my Natural Killer Cells, also a kind of lymphocyte, and that came back at 100%. So it is that group of NK cells which is protecting my myeloid colony (still at ...